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Advocacy Day

Komen NENY meets with over 20 legislators at the New York State Capitol

March 1, 2016

On Tuesday March 1st, Staff and Board Members from Susan G. Komen Northeastern New York met with legislators at the New York State Capitol for the 2016 Advocacy Day. The team met with over 25 legislators in the assembly and senate to ask for their support of the Govenors proposed $91 million breast cancer initiative and continued funding of the Cancer Services Program at it's previous amount of $25.3 million. We had a fantastic day advocating for services that would support the women of New York and increase screening and early detection rates. In addition, our educational table on the concourse presented a display titled "A Story Half Told" and featured the stories of several women living with metastatic breast cancer.



Press Release:

Susan G. Komen Northeastern New York calls upon the New York State legislature to support Governor’s $91 million breast cancer funding proposal & to preserve NYS Cancer Services Program funding

The Governor’s $91 million in funding is an important proposal for breast cancer education and increased access to screening 

Komen Northeastern New York also urges the legislature to maintain eligibility and preserve funding for the New York State Cancer Services Program at the level of $25.3 million

Albany, NY, March 1, 2016– Volunteers and representatives from the Susan G. Komen Northeastern New York came to the New York State Capital to urge legislators to support the Governor’s proposal to provide $91 million in funding for breast cancer education and increased access to screening, in the FY17 budget. Susan G. Komen Northeastern New York also came to urge legislators to maintain eligibility and preserve funding for the New York State Cancer Services Program (CSP) at the level of $25.3 million. 

“Governor Cuomo’s breast cancer proposal will ensure that more women in New York State have access to breast health education and screenings, which will increase the chance of early detection and decreased mortality.  Support for the prospective FY2017 budget will be essential in advancing efforts to realize these goals,” said Victoria Roggen, Executive Director of Susan G. Komen Northeastern New York. “In addition, safeguarding the New York State Cancer Services Program funding will be key to ensuring low-income, uninsured women continue to have access to vital screening services. It will also guarantee newly insured women have access to health education, case management, and patient navigation services.”

As a part of the efforts, Susan G. Komen Northeastern New York partnered with Pfizer to bring the display “Breast Cancer: A Story Half Told” to the Empire State Plaza Indoor Concourse, for the day. Pfizer launched the “Breast Cancer: A Story Half Told” display in October 2014 hand-in-hand with a steering committee of patient advocates, healthcare professionals and subject-matter experts by unveiling research aimed at understanding the societal misperceptions of Metastatic Breast Cancer (MBC) and gaps in patient-physician dialogue. As part of a broader suite of experiential materials developed to communicate this program to the public, Pfizer has created these travelling installations showcasing the photos from this campaign to audiences around the country. These installations are intended to provide a glimpse into the daily lives of these women and show that women with MBC can still live a fulfilling life despite their diagnosis.

Statistics about Breast Cancer in New York:

·         In 2016, an estimated 246,660 women in the U.S. will be diagnosed with breast cancer and 40,450 women will die from this disease. 

·         In New York State, breast cancer is the most common type of cancer and second leading cause of cancer-related death among women.  Approximately 15,000 women in NY are diagnosed with breast cancer each year while 2,700 die year as a result of breast cancer.

·        78.6 percent of women in New York reported having a mammogram at least once every other year in 2014; an estimated 576,000 women did not.

·      Women who lack breast health knowledge may be less likely to have breast cancer screenings.  Increasing the number of women who receive screenings could allow breast cancer to be detected at an earlier age when treatment outcomes are most likely to be favorable and the risk of mortality is lower.

·         Breast cancer can be up to five times more expensive to treat when it has spread beyond the breast to other parts of the body.

Metastatic Breast Cancer 

Metastatic (Stage IV) breast cancer affects the lives of an estimated 155,000 women and men in the U.S. and is associated with 40,000 deaths every year.  Approximately 20-30% of individuals diagnosed with an early stage breast cancer will eventually develop metastatic breast cancer ands it is the initial diagnosis for 6-10% of all new cases each year.  Currently, there is no cure for metastatic disease and treatment is an ongoing process for the individuals affected.  Efforts to educate the public, increase awareness, and advocate for policies regarding metastatic breast cancer aim to extend life, improve quality of life for those living with the disease, and eventually discover a cure.

ABOUT SUSAN G. KOMEN NORTHEASTERN NEW YORK

Nancy G. Brinker promised her dying sister, Susan G. Komen, she would do everything in her power to end breast cancer forever. In 1982, that promise became Susan G. Komen for the Cure and launched the global breast cancer movement. Today, Susan G. Komen is the world’s largest grassroots network of breast cancer survivors and activists fighting to save lives, empower people, ensure quality care for all and energize science to find the cures.

Locally, Susan G. Komen Northeastern New York is working to better the lives of those facing breast cancer in our community.  Through events like the Komen Race for the Cure®, Komen NENY has invested more than $3.1 million in community breast cancer and breast health programs in our 15 county service area. Up to 75 percent of net proceeds generated by the Affiliate stay in the area. The remaining income goes to the national Susan G. Komen Grants Program to fund groundbreaking breast cancer research, meritorious awards and educational and scientific programs around the world.  For more information, visit www.komenneny.org or call 518-250-5379.

 

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